tag:blogger.com,1999:blog-3022513051617800292.post1428767746977874464..comments2013-04-24T16:12:13.657-07:00Comments on Hope for A Cure: Welcome!2HopeForACurehttp://www.blogger.com/profile/00308635565414486108noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-3022513051617800292.post-23379452363582831482012-01-09T17:53:29.241-08:002012-01-09T17:53:29.241-08:00So what do the rest of us do in the meantime? I, a...So what do the rest of us do in the meantime? I, along with millions of others,still suffer horribly with CFIDS/ME and severe FMS. Mine has gotten worse over the past 14 years which is almost impossible to imagine.But when I am pretty much bedbound and I hear of others having access to not just one, but two research testing groups, while I'm glad someone is feeling better,I'm about to leave this planet as my life is pretty well gone with the horrible pain in every cell in my body and the fact that if it weren't for my dh, I'd have to be in a nursing facility. I would love to be in a research group. At least then, I might have some semblance of relief and some hope that things might get better.graciegorrellhttps://www.blogger.com/profile/14280274355003187097noreply@blogger.com